Thursday, June 26, 2014

Summer Time

Hello everyone! All is well on Sam's journey to recovery.  Sam is back walking with the aid of the Locomat at Neuroworx.  Sam's attitude has been awesome and she feels really good about the progress she is making. We are using the car for most of Sam's transportation now. It only took a few times for Sam to be able to get in and out of the car without great difficulty. Oh! Neuroworx just celebrated their 10th anniversary. Congrats to Dr. Hull and Jan Black for having a vision that helps so many people. Sam did well doing online college courses during spring semester and she is looking forward to continuing her education in the fall. Sam has also been to a few high schools in the Salt Lake area as a member of a motivational speaking team set up by one of the patients at Neuroworx. Sam's big toe nail for some reason stopped growing so her doctor pulled it off. He will recheck its progress in a month. All in all, Sam's physical and mental health is doing great. She is looking forward to her new nephew's visit in August. Other than that the rest of us are still holding on and watching what this ride we call life throws at us in the future. We give continual thanks for all the friends and family that keep us going. Love you all!

Friday, May 2, 2014

Spring Time

Hi all! Things are going good with Sam. Neuroworx started walking her again. Her hip had been hurting after some of the therapy so we had it scanned and nothing was found to be out of order. The therapist did deep tissue stretches and now she doesn't have pain anymore. Her attitude has been wonderful lately and she told Jill that she can feel more in her feet and legs. Jan the lead therapist was happy with the way her ankles were working while walking her and is now wanting to focus on her knees. Sam has been doing some online college from USU. She thinks she wants to be a forensic analyst. Sam is also doing some speaking at high schools in the Salt Lake area with other patients from Neuroworx. We went out to Leamington canyon for Easter and had a great time with family. Sam had one of her arms sunburned. I guess we will do better at turning her when out and about. Continued thanks to all of Sam's friends for keeping her in the loop.  We thank all our friends who continue to support us and pray for our Sam. Love you.

Wednesday, March 12, 2014

I apologize to everyone for not keeping up on Sam's blog.  Here is her latest update.  Sam has been doing awesome. She is really into her therapy these days. Not to say she hasn't always been but she told us she is starting to feel her legs more and has a renewed drive to push along.  Sam asked us if she walks will we bring her to a Yankees game.  We told her we would take her where ever she would like to go.  Sam's favorite team is the Yankees and Jeter is retiring after this season. So its really concerning to her.  Other patients at Neuroworx are having great success.  One young man that was hurt paragliding is now walking with the aid of crutches.  Its awesome to see their excitement when they start to recover.  Neuroworx is a great place and has been very kind to our Sam and all of their patients for that matter. Neuroworx is building a bigger place to serve more people.  They are hoping to break ground this spring.  Any donations would be greatly appreciated. Look up their blog or stop in and see what great things happen there.  They don't turn anyone away that needs spinal cord therapy. Sam is speaking at standards night in Nephi this Sunday night.  She does a great job telling her story. She has really grown as a person through this trial.  She can be inspirational when she wants to be.  Sam's pivot seat for the car is getting installed today!  It should allow Sam to transfer herself into the seat and hit a button that retracts the seat into the car. This will give Sam more freedom to go with friends if she wants and will save our backs while trying to transfer Sam in and out of our vehicles. Sam is also taking some online classes and is doing very well with those.  She continues to have the late night support of her friends and we appreciate that.  Its nice to see her happy and focused on what she is doing.  Thanks so much to all who check up on her from time to time.  Thanks for all the continued prayers. 

Thursday, January 16, 2014

More Trials?

Can you believe how fast the holidays went by.  Another year to look forward to. Sam's baclofen trial went great. Baclofen is a medication used for decreasing muscle spasms. Most people take it orally and the body distributes it to all muscles in the body. The problem is it needed to be more spinal cord specific. A group of researchers developed a trial of the drug that is put into the body like an epidural.  So a couple of days ago I took Sam up to the U of U for the trial.  Sam's only apprehension was the needles they used. She had an IV placed, a flu shot, and the epidural that requires the use of a couple of needles. After the medication was injected she was assessed every two hours to see if her spasms, especially in her legs had been reduced. The assessment prior to the trial was hilarious. The doctor and physical therapist came in and neither could bend Sam's legs first thing in the morning. Both proclaimed Sam as the person with the worst spasms they have ever seen. Sam uses the spasms she gets to assist her in moving in some cases. The majority of spinal cord patients have some level of spasticity.  We stayed in a room for about seven hours.  It took almost two hours for her legs to go flaccid.  So what this tells the doctors is the baclofen would be a benefit to her. A company has developed a pump that doses small amounts of the medication into the spinal cord to help reduce or eliminate the spasms.  They instructed us to go home and think about having the pump surgically implanted.  We are going to let Sam think about it for a few days and talk with her main physical therapist about her thoughts on its use.  When Sam's legs were spasm free the doctor asked her how they felt. She said "weird". She was so used to feeling the spasms the feeling was foreign to her. Her regrets of that day were, the IV placement hurt her little arm, and the doctor doing the epidural was not a hotty. Go figure. Sam snap chatted her friends and did homework the whole time.  The epidural wore off sometime the next day.  We are still waiting for the power car seat to help Sam get in and out of the car but it looks like it will be soon.  A couple of people at Neuroworx are starting to walk again.  It is so enjoyable watching someone getting a chance to walk again. It is taking longer than Sam or we want but, she is progressing toward recovery.  We continue to appreciate everyone who visits Sam.  It truly is part of her psychological health. Please know how much we appreciate the concern everyone shows us for Sam.  Thanks for taking care of us in our time of need. Its going to happen!! Pray, Pray, Pray.  Love You Guys.

Sunday, December 15, 2013

Sorry its been so long since our last post.  Sam continues to be busy with therapy four days a week. She is doing so well when transferring from her wheelchair.  Vocational Rehab is going to do a couple things for Sam.  They are going to install an electric rotating chair in a newer car we just purchased.  They will also help Sam go to college.  We are going to start her with a couple of online courses at first.  Sam's hip had been hurting her so we had xrays and a CT scan done and all was well.  The therapists have really been working the hip and she is about ready to start walking on Lokomat again.  Sam will do the Baclofen trial for her spasms after the holidays.  This will also help the therapist know in what direction would be best to take Sam in her recovery.  We appreciate all of her friends that continue to come and visit Sam.  It makes her day and she likes to keep up with what her friends are doing at college. We had 48 people for Thanksgiving!  If you know Sam she was gracious when so many came to visit but was ready to be alone as soon as she could. Her Uncle Tom and his family drove up from Louisiana and spent Thanksgiving week with us.  We had a great visit and my brother told me how much he enjoyed visiting with Sam.  It was hard to see them leave. So many people in Louisiana are doing prayer list for Sam and everyone else we tell them needs help.  What great friends and family we have!  Please continue to keep all those like Sam or anyone who is suffering in your prayers and thoughts.  Prayer works.  

Saturday, October 12, 2013

Good Report

Hello all!  It continues to be busy around our house.  For insurance reasons we had to take Sam up to the UofU to the doctor that treated her while inpatient.  Sam was pretty nervous about the meeting.  It was made worse by the staff telling her that she would have to see a doctor who works with Dr. Rosenbleuth.  The last time she saw Sam it did not end up good for this doc.  Jill kindly told them about that experience and the contacted Dr. Rosenbleuth.  I was ready to light a fire under someone. I made the appointment and if I wanted Sam to see this person I would have said so.  All worked out.  Dr. Rosenbleuth was so good to Sam.  They talked for about 45 minutes then he assessed her functioning. He couldn't believe how strong she was.  He was impressed at how far along she has progressed and his words were very encouraging.  Sam was in a much better mood after it was all over. Sam continues to work with Neuroworx four days a week. Progress is slow but all involved think there is much more to happen.  Dr. Rosenbleuth also told us about a breakthrough for spasms. Most spinal cord injury patients have spasms.  The nerve impulses are trying to find the right path but are sent elsewhere.  I will bring Sam up for a trial with this new procedure when its available.  Hopefully that will decrease her spasms and make her life a little more enjoyable. Sam has been busy with friends. She recently went to the Imagine Dragons concert and had an extremely good time.  I had to listen to her and her friend sing all the songs they just heard.  Thanks for all the prayers and visits we really do appreciate all of them. 

Saturday, September 14, 2013

More Work!

Hello All! Its been very busy lately. Samantha's physical therapist went to a conference held by the people that provide the walking device called the LokoMat.  She told us every reason they gave for having a patient use the trainer was specific to Sam.  She said I kept saying to myself, that's Sam.  So when she got back she talked with us and Sam.  She wants to walk her with the LokoMat and with the therapist all four days we go and keep her longer for all the other training she wants her to complete.  She told us she wants her to do it for three months then she will reevaluate her.  Sam agreed and so did we.  Sam  has been awesome but tired when we get home.  Neuroworx is having a new building constructed next to the workmans compensation building across from Jordan High School. WCF is putting up the front money and the land adjacent to their building. This will triple the size of the area that patients can be treated.  I am so thankful for Dr. Dale and Jan Black for starting this fine center.  It has truly changed many lives. Last night Sam and I went to a donation dinner at the WCF building.  A new video showing some of the current patients and brief interview.  If I can get a copy I will.  It was great and Sam looked good during her interview.  Those donating are truly awesome. There are many but some names I remember or Sorenson, Mannsell, and Miller. The MC that night broke his neck at the C2 level.  Most people do not live with that break.  I could not even tell he had been in an accident. He looked completely normal and did an amazing job. The stories were great and gave me so much hope for my Sam.  Sam is strong and continues to be focused.  Thanks again to everyone who thinks and prays for Sam.  Love you!