Friday, May 17, 2013
How can life fly by so quickly? It feels like we never stop! Sam is very busy with therapy, school, and softball. Juab did make it to the state tournament, so hopefully they can do well. We played Spanish Fork for out last region game. Sam threw out the first pitch. After the game the Spanish Fork team surprised Sam with a quilt made from her old t-shirts and a check for almost two thousand dollars they raised selling suckers. We had no idea. We knew about the quilt but not anything else. Sam played for Spanish Fork last summer and got to know them pretty well. They have been supporting her ever since her accident happened. The whole team showed up when she was in ICU. Every time Spanish is around at any tournament or game they come over to see Sam. What a classy team. After that last game they invited both teams to stay for a barbecue. It was nice to meet some of these great girls and their parents. I just hope they know how forever grateful we are for their support. I have missed watching Sam out on the field, but have enjoyed watching her be so loving and kind to those who show her support. Thanks Spanish Fork, Good luck at state. Sam's therapy is going great. Neuroworx has been keeping her for three hours at a time. She is getting stronger and stronger. They are confident good things are happening. They have been walking her in the extoskeleton weekly. This week Sam is in St George with her mother and sisters for State Softball. Sam is going to throw out the first pitch for the championship game. She wasn't too thrilled about having so much attention but doesn't always think about herself all the time anymore. She has done some growing up lately. Sam also graduates this week! She thought she would get a break from school afterwards but she rolled her eyes when Jill told her we needed to get her registered for some college classes. I'm hoping we can slow down a little during the summer but.....! We continue to appreciate everyone who talks with us about Sam. We would really appreciate prayers on her behalf and on behalf of all those patients at Neuroworx. Please google Neuroworx and read about this amazing place. They need our support too! Thank you, Thank you, Thank you for all you do for us!
Wednesday, April 10, 2013
Point for me
Therapy has been going well for Sam. She walked for the first time in the ecto-skeleton they have a Neuroworx. Everything they do is to remind your body how to fire the neurons to accomplish what you want to do. They have been keeping her upwards to three hours per workout. I love it. Sam has been getting pretty strong. Its really nice that she can roll over and reposition herself during the night. Last night when we were putting her to bed I was putting on her hand splints and I asked her if she could move her pointer finger on her left hand. She moved it pretty easily. This doesn't sound like much for you and me but for a SCI person it is great. The hand specialist at Mountain View in Payson has been working hard with her. Its so important for someone with a spinal cord injury to have their hands. I am so glad its starting to come around. A couple days ago when Jill was doing something in the room with Sam their was a cold water bottle leaning against her thigh. She asked Jill what is touching me, its cold! Can you move it. Just a couple months ago she didn't have a lot of heat/cool sensation on her skin. Slowly but surely things are getting better. Sam has been active with the softball team. We still drive her around the state for games. We appreciate all who talk with us. Thanks so much for continuing to care about us and Sam. Love to everyone.
Thursday, March 21, 2013
Is It Spring Yet
Just got back from a softball tournament in St. George last weekend. Man was it great. Sunny and 83 degrees. Sam had to go down to support her team and Coach Gee needed her in the dugout. It was just Sam and me. Jill was doing something with her mother and sisters. She made me take her down to the Mall and help (pay) her get a new outfit. The team did pretty well and we both went home with sunburns. Sam has been so awesome lately. Sam is usually quiet and very private, unless she is with her group of friends. She has been so outgoing and nice, I'm waiting to see what she really wants. She spoke a couple of weeks ago in her oldest sister's (Mariah) Young Women Group meeting. It was great. I think everyone was touched by what she said. She does tell me sometimes she doesn't like to be the strong one. It has been so fun for me to be with Sam so much. We make a good team. Listening to her try to sing Taylor Swift or Imagine Dragons songs back and forth to therapy is pretty funny. Sam is still doing 5 days a week therapy and progressing well. Just watching her reposition herself in a chair or in the truck you can see improvement. She enjoys the group of patients and caregivers at Neuroworx. She isn't a morning person, but after therapy her attitude is always great. Jill took her to therapy today. Its pool day. I think she likes the pool a lot. Everyday she ends up at the ballfield helping and supporting her team. We are so blessed to have the friends and family we do. We grieve for those who are in our situation, or worse, and do not have the support we do. Please, please, please continue to pray and fast for Sam and all those who are in need physically, emotionally, or mentally. Thank you so much for talking with us and asking about Sam. I never get tired of letting everyone know about her.
Wednesday, February 6, 2013
NEW DIGS
Well we have officially changed from the U of U therapy department, to Neuroworx in South Jordan. I can get Sam to her appointments in 50 minutes versus 1.5 hours it used to take us. Sam was pretty surprised on the first day when they stood her up and made her bear her own weight with a walker. The patients and staff are hilarious. Dr. Hull showed Sam around the place while I filled out paperwork. Dr. Hull is a co founder and had been paralyzed from the neck down after a trampoline accident dislodged his neck. He now walks unaided, it doesn't look perfect but he is doing it. His accident happened in 1999. Neuroworx is a non-profit organization that uses grants and donations to provide therapy to anyone they can. Some insurances will only pay for 20 minutes, but at Neuroworx they work with you for as long as you need. They currently serve about 48 patients from all over. They have been in business for 8 years. We also found a hand specialist in Payson. Sam will have hand therapy an hour before her physical therapy on Mondays and Fridays. Tuesday, Weds, Thursday, will be therapy at Neuroworx. The U of U has been wonderful working with Sam but the hours we will save being on the road will help immensely. Sam's core and arm strength are increasing all the time. Being able to move herself while in bed or chair will keep her skin healthier. Her attitude has been pretty good the majority of the time. Sam is still Sam. Getting her to school three days a week has been great for her and us. Her friends are still fabulous. I know it would be a lot harder without them. We appreciate all the encouraging cards and letters Sam gets.
Tuesday, January 15, 2013
Progress and Blessings
The holidays were so fun, but so busy! I was terrible at keeping up the blog and I really hope to do better! Sam is doing so well. She has progressed so much in the last several weeks. Sam is now able to feel all the way down into her hips. She also has some feeling on the tops of her toes. Her core strength has increased greatly. I hadn't seen her for a few weeks and when I did at Christmas I couldn't believe how much straighter she could sit in her chair. She is also able to bend over and sit back up independently. She can even roll her self over in bed! She is gaining a lot of strength and is able to do more and more each day. A friend at work asked me how Sam was. I was giving her an update and she said, "I remember not that long ago and you were excited because she had scratched her own face. And now she is doing so much more!" She really has come so far in only a few months.
Sam finally got her own wheelchair the end of December. The wheelchair is made specifically for her body so it took a long time to get it delivered. It is really nice and I think will really allow her more independence. She continues to attend therapy at the U and in Payson. My parents are looking into a place called Neuroworx to continue her therapy. They have a lot of really specialized equipment and it seems like it could be a really good thing for Sam.
Sam's attitude continues to be great. She occasionally has a rough moment, but she really tries to get over it quickly. Her friends help with her attitude so much! They include her in everything and visit her almost every day. I am so thankful for the wonderful friends she has. I just appreciate them so much! Sam started going back to school this week. She will be going three times a week in the morning before therapy. My mom said that her first day went well. I think it will be great for her to be independent for those few hours. We are thankful to all of the school staff who are working to make things go smoothly for Sam.
We are so thankful for everyone's continued love and support. It seems that whenever there is a need then someone steps in to help. We are so blessed to have so many wonderful people in our lives.
Sam and Kaitlin got to see Justin Bieber in concert! It was so fun dropping them off and seeing how excited they were. The staff at Energy Solutions Arena were so helpful in exchanging their seats. We bought the tickets before the accident and so they were obviously not wheelchair accessible. They were actually clear up in the nose bleeds! But, they were greatly upgraded and ended up in the lower bowl on row 26!
I am so grateful for a loving Heavenly Father that continues to be with Sam continually. Every day there is some tender mercy in her behalf. Two examples come to mind that happened when I was with Sam. The day of the concert I prayed that things would go smoothly. I knew it would embarrass Sam if it was a big hassle and I just wanted her to have fun without any bumps in the road. And although kind of silly I also prayed they would get good seats. Well, everything went so easily and they got great seats. I was so happy! I know in the eternal sense the concert doesn't matter at all, but Heavenly Father blessed Sam so that she could have a fun day and have something to be excited about. Another example is from Christmas Eve. Sam had some really cute new boots to wear to our party. I was doing her hair and my mom was trying to get her boots on. She could NOT get them on. So, she had my dad try and he couldn't either. Sam was getting frustrated and I felt terrible. I said a quick prayer that they would go on. A few minutes later they went on! Again, such a simple thing, but it was important to Sam and Heavenly Father blessed her. These are two such simple examples, but she really is blessed so much continually.
Sam finally got her own wheelchair the end of December. The wheelchair is made specifically for her body so it took a long time to get it delivered. It is really nice and I think will really allow her more independence. She continues to attend therapy at the U and in Payson. My parents are looking into a place called Neuroworx to continue her therapy. They have a lot of really specialized equipment and it seems like it could be a really good thing for Sam.
Sam's attitude continues to be great. She occasionally has a rough moment, but she really tries to get over it quickly. Her friends help with her attitude so much! They include her in everything and visit her almost every day. I am so thankful for the wonderful friends she has. I just appreciate them so much! Sam started going back to school this week. She will be going three times a week in the morning before therapy. My mom said that her first day went well. I think it will be great for her to be independent for those few hours. We are thankful to all of the school staff who are working to make things go smoothly for Sam.
We are so thankful for everyone's continued love and support. It seems that whenever there is a need then someone steps in to help. We are so blessed to have so many wonderful people in our lives.
Sam and Kaitlin got to see Justin Bieber in concert! It was so fun dropping them off and seeing how excited they were. The staff at Energy Solutions Arena were so helpful in exchanging their seats. We bought the tickets before the accident and so they were obviously not wheelchair accessible. They were actually clear up in the nose bleeds! But, they were greatly upgraded and ended up in the lower bowl on row 26!
I am so grateful for a loving Heavenly Father that continues to be with Sam continually. Every day there is some tender mercy in her behalf. Two examples come to mind that happened when I was with Sam. The day of the concert I prayed that things would go smoothly. I knew it would embarrass Sam if it was a big hassle and I just wanted her to have fun without any bumps in the road. And although kind of silly I also prayed they would get good seats. Well, everything went so easily and they got great seats. I was so happy! I know in the eternal sense the concert doesn't matter at all, but Heavenly Father blessed Sam so that she could have a fun day and have something to be excited about. Another example is from Christmas Eve. Sam had some really cute new boots to wear to our party. I was doing her hair and my mom was trying to get her boots on. She could NOT get them on. So, she had my dad try and he couldn't either. Sam was getting frustrated and I felt terrible. I said a quick prayer that they would go on. A few minutes later they went on! Again, such a simple thing, but it was important to Sam and Heavenly Father blessed her. These are two such simple examples, but she really is blessed so much continually.
Monday, January 7, 2013
Happy New Years!
My how time flies at this time of year. Christmas is such a great time. All the family was home for Christmas morning. Sam scored some pretty nice stuff from Santa, Mom and Dad. Sam continues to be very active despite my attempts to circumvent her fun. She went out with her friends to dinner and to see the lights in Spanish Fork. I was called when transfers were needed. It will be wonderful when she can get in and out of a car by herself. She will have much more freedom to go with her friends without a tag-a-long. I was so happy to be working on New Years Eve. Sam had a party downstairs at our home and Kaitlin had one upstairs. Sam was happy to be down in the dungeon again. She had to check where all her stuff was just to make sure Kaitlin didn't steal anything. Sam's friends continue to be a great support. We love them very much for not forgetting Sam in their daily lives. Many late hours have been used up watching movies. Sam has recently acquired an electric recliner. It makes me happy to see her out of her bed. Just sitting in bed makes you tired. The chair supports her nicely and is better for her skin's health. A couple of days ago Sam and Kaitlin attended the Justin Beiber concert. They said it was awesome, but couldn't hear very well for a little while. The folks at Energy Solutions took good care of them. Therapy continues to go well. Other than listening to Sam sing every song on the radio for a couple hours, I don't really mind the drive. I am going to check out a new therapy place called Neuroworx. The are a group of therapist that have all the latest equipment to help Sam's rehab. They are in South Jordan so our drive would be an hour less per day. The UofU has been great but I like to keep her options open. We hope the New Year brings much joy to everyone's family. We continue to ask for your prayers in behalf of Sam and all those others struggling as she does. We love you all and pray the Lord's blessings be upon you and your families. Love ya!
Monday, December 10, 2012
Painless
Sorry its been a while since last post. Life can be so busy. Sam is Sam. We have been taking her all over with her friends so she can have her life as normal as possible. She is taking full advantage of our hospitality. We would have it no other way. Sam continues to have little miracles happening almost every week. Her left hand is moving more and she told me the feeling in her little finger on the left hand is returning. She also told us she can feel down to her hips. She thought she pulled a muscle. The UofU checked her out and gave her a clean bill of health. Still no leg movement but during a shower she told me she can feel the pressure of the water on her feet. Sam has been amazing. I can tell when she is fighting not to be in a bad mood. We talk to her a lot about attitude being a big factor in recovery. She is such a strong girl. Oh! the pain in her neck is almost completely gone. She can articulate her head pretty well. She moves around in bed during the night too. Being able to move around helps her skin stay healthy. She doesn't let us watch in therapy much but when I do sneak a look they have her doing all sorts of things. I told her to hurry up and transfer herself so my back will last a few more years. Sam has transferred herself to bed-chair, chair-bed a few times but needs to be stronger so we don't have to be there with her. Is she doing great or what! A couple weeks ago our area 70, Elder Leavitt visited Sam after speaking in our ward. Our former stake president came with him. The feeling in the house felt so warm. I believe we usually have a good feeling in our home but this was extra special. He spoke with Sam, he cried with Sam. He genuinely wanted to get to know Sam. Of course its Sam and he had to extract every ounce of information from her. Sam is very private but was very gracious with him. He is attempting to have her correspond with her weekly. Having the priesthood bless our home and daughter is tremendous. My best birthday gift was Sam's kiss on my cheek today. Those don't come very often, but I got one. Our community keeps amazing us all the time. We are so lucky to live where we do. We may be having some company for a while. Sam asked us to offer our home to a young man who is going through therapy with her. He was ejected from a vehicle and broke his 5-6 cervical. She told us he had to be at the U. He is starting to move his hands and knows his best shot at rehab is the U. Of course we could not hold the offer back. We gave his dad the offer and he is going to talk with his wife. They live in St George and it would help them out a lot. Thanks for the prayers, keep them coming. Love you all.
Subscribe to:
Posts (Atom)